We are an independent support group dedicated to supporting individuals, families and carers in the South East Essex area, whose lives are affected by Epilepsy. Our members are drawn from the South East of Essex within an area covered by Castle Point, Basildon and Southend Unitary boundaries. We also have some members who reside outside these areas. The committee comprises of the Chair, Treasurer, Secretary, Social Secretary, Newsletter Editor and members who have been co-opted to carry out specific tasks. Our committee is always seeking new members so if you have ideas on how we can improve the quality of the lives of people affected by epilepsy we will be happy to hear from you.
Our aim is to offer advice support to people with epilepsy, family, friends and carers, and raise awareness of the condition.
Successfully campaigned for a Specialist Epilepsy Nurse having approached Southend University Hospital and our local MPs to secure the position at the earliest opportunity. Raising awareness in our local schools, colleges and universities so the pupils with epilepsy receive a good education. Provided a test group for the DVLA for the development of their new driving license on line application system. Encouraging parents of young children to form their own group to address their particular needs because most parents of small children have difficulties attending our evening meetings. Talking to our local Clinical Commissioning Group to help them improve the services our members currently receive. Working with the Clinical Commissioning Group to raise awareness of new guidelines for specialist healthcare required for pregnant women with epilepsy.